Category Archives: Cystic Fibrosis : Part 3

A Comparative Study of the Psychosocial Assets of Adults with Cystic Fibrosis and Their Healthy Peers: Methods (Part 2)

The emotional quality of a subject s social support was measured by the Family APGAR, a five-item scale measuring the familial support and nurturance available to a respondent. The APGARs original three response choices were expanded to five to make the number of response options consistent with other items in the questionnaire. Answers from the five APGAR questions were summed to form an index of emotional social support. Continue reading

A Comparative Study of the Psychosocial Assets of Adults with Cystic Fibrosis and Their Healthy Peers: Methods (Part 1)

Subjects
Eligible subjects with CF were 18 years of age or older, English speaking, had confirmed diagnoses of CF on the basis of positive sweat tests, and were being actively followed by the Cystic Fibrosis Center at the University of California, San Diego (UCSD). Of 55 patients meeting these criteria, 37 agreed to participate. Consistent with the disproportionately high prevalence of CF among whites, all CF subjects were white. Continue reading

A Comparative Study of the Psychosocial Assets of Adults with Cystic Fibrosis and Their Healthy Peers

A Comparative Study of the Psychosocial Assets of Adults with Cystic Fibrosis and Their Healthy PeersAn ever-increasing number of patients with cystic fibrosis (CF) are living to adulthood. An abundance of data is available describing the medical and physiological facets of CF in adults. However, considerably less is known about the social and psychological status of adults with CF. More such information is needed, in part so that both researchers and clinicians may make more informed judgments about the degree to which an individuals physical health is affecting his or her psychosocial functioning. Continue reading

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